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My Own Definition

Living with and not defined by chronic illness

Woman on a Deserted Road

"What’s most important is that I am not defined by EDS. How I live with it is how I can write my own definition."

-The Story

The Story

How It Started

About Me

You can call me Sounally

About Me

Ehlers-Danlos Syndrome

Resources about Ehlers-Danlos Syndrome

What IS ehlers-Danlos Syndrome?

Learn about this rare chronic illness that started this journey

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